This Rare Disease Day Symposium will bring together some of the thought leaders in the rare disease space for thought-provoking presentations and candid discussion about the present and future state of clinical research in rare disease. We will feature a “360” perspective of voices from patients, legislators, regulatory experts, physicians and sponsors as well as the latest local and national initiatives driving change.
Representatives from the NC State Legislature, NC Rare Disease Advisory Council, UNC Medicine, NORD, patient advocacy, as well as biotech and policy leaders will lead an interactive panel discussion to develop actionable ways in which we can better collaborate to support patient needs.
We hope that you can join us in support of Rare Disease Day 2019!
The agenda will be published soon. Please check the event website for further information.
Space is limited!
Syneos Health Corporate Headquarters
Rooms #1006, 1008 & 1010
1030 Sync Street
Morrisville, NC 27560